The documentary, titled I Am: Céline Dion, follows the Quebec chanteuse as she is identified with SPS and navigates her first 12 months dwelling with the neurological situation.
“This final couple of years has been such a problem for me, the journey from discovering my situation to studying the right way to reside with and handle it, however to not let it outline me,” Dion, 55, mentioned in a press release.
Dion shares that she is optimistic concerning the future and nonetheless plans to return to singing.
“Because the highway to resuming my performing profession continues, I’ve realized how a lot I’ve missed it, of having the ability to see my followers. Throughout this absence, I made a decision I wished to doc this a part of my life to assist others who share this analysis.”
The synopsis for the doc reads: “From visiting her couture touring wardrobe and private results to spending time within the recording studio, the documentary captures a world megastar’s never-before-seen non-public life. An emotional, energetic, and poetic love letter to music, I Am: Celine Dion captures greater than a 12 months of filming because the legendary singer navigates her journey towards dwelling an open and genuine life amidst sickness.”
The documentary, which can air on Prime Video Canada, has but to be given a launch date.
What’s ‘Stiff-Particular person Syndrome’?
Dion first revealed her analysis to the general public in December 2022, saying the illness doesn’t enable her “to sing the best way I’m used to.”
She cancelled the remainder of her world tour final Could, apologizing to her followers.
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“I’m so sorry to disappoint all of you as soon as once more,” she mentioned in a press release. “I’m working actually laborious to construct again my energy, however touring may be very tough even whenever you’re 100 per cent.
The transfer got here after she postponed her return to her Las Vegas residency in 2021, citing medical points.
This previous December, Dion’s sister, Claudette Dion instructed French-language information website 7 Jours that her sister can now not management sure physique motion, however that the last word purpose is “to return to the stage.”
“In what capability? I don’t know,” she added.
And a number of other months earlier, in August, Claudette mentioned that one other of their sisters, Linda, had moved in with Dion to assist along with her care.
“After I name her and he or she’s busy, I converse to my sister Linda who lives along with her and tells me that she’s working laborious. She’s listening to the highest researchers within the area of this uncommon illness as a lot as potential,” Claudette instructed Le Journal on the time.
Celine Dion’s sister says singer has misplaced management of her muscle groups on account of stiff individual syndrome
The reason for SPS, a particularly uncommon illness, continues to be unknown, in line with Yale Medication, “however researchers suspect that it could be the results of an autoimmune response the place the physique assaults nerve cells within the central nervous system that management muscle motion.”
The identify doesn’t do justice to the ache and life-changing signs the syndrome causes, Tara Zier, founding father of the Stiff Particular person Syndrome Analysis Basis, instructed The Canadian Press final 12 months.
“Lots of people have challenges with mobility. Many have assisted units for mobility, walkers, wheelchairs. Some persons are bedridden,” she mentioned.
The Stiff Particular person Syndrome Analysis Basis says “the commonest signs of SPS are muscle rigidity, stiffness and spasms within the muscle groups of the trunk together with the again and limbs.”
These may be triggered by environmental stimuli, like loud noises or emotional stress.
“The muscle spasms may be so extreme they trigger the individual to fall down. The muscle groups step by step calm down after the stimulus is gone,” the Yale Medication web site states.
Whereas there is no such thing as a treatment for SPS, when docs deal with sufferers with this situation, Yale Medication says they give attention to managing the signs with medicines “akin to sedatives, muscle relaxants, and steroids.”
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